Courage Is: Being A Mother To A Child With Special Needs

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June 3, 2013 by marceladevivo

When I was only 36 weeks pregnant, I was told that my son wouldn’t survive birth and that if he did, he would likely quickly die after birth or before his first birthday.
The diagnosis we were given was that our son had holoprosencephaly (HPE), a disorder that affects brain development; it usually presents itself around the fifth or sixth week of pregnancy. Most babies don’t survive at conception, and the few that do mostly die at birth or as infants…

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